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How many of these rare disorders do you know about?
Angelman Syndrome, Rubinstein Taybi Syndrome, Gaucher Disease, Rare Chromosomal Anomalies, Pompe Disease, Trisomy 18, Achondroplasia, Beta Thalassemia Major, and more.
Watch this video to hear from 3 families about their journey with rare disorders. We can never imagine the strength and tenacity needed for these families.
As part of our initiative to raise awareness for Rare Disorders, catch 2 of our LIVE cooking tutorials hosted together with Rare Disorder Society (Singapore) where our hosts share with you more about their journey.
Together, we can make a difference. If you’d like to help, the link to donate can be found at:
About Rare Disorder Society (Singapore)
Rare Disorders Society (Singapore) is a non-profit organization that focuses on and supports rare diseases patients in Singapore. Established in 2011, it aims to create awareness about various life-threatening rare diseases.